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Baby from Frigiliana battles ultra-rare neurodegenerative disease as family launches urgent funding appeal

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Frigiliana parents Ylenia and David faced unimaginable fear on December 12, 2025, when their four-month-old son Nahel suddenly suffered convulsions at home in the early hours. Emergency hospital transfers, extensive tests and anxious waiting led to a devastating diagnosis: IRF2BPL-related disorder, also known as NEDAMSS syndrome.

Condition affecting fewer than 40 people worldwide

Nahel entered the world on August 25, 2025, at Hospital Comarcal de la Axarquia without complications and developed normally at first. Doctors later identified the extremely rare genetic neurodegenerative condition, which disrupts neurological development and risks causing regression in acquired skills such as speech or movement, alongside epilepsy and motor disorders. Only about 40 cases exist globally, with roughly 15 in Spain and two in Andalusia. At seven months old, Nahel functions at the level of a two- or three-month-old infant, though he has begun smiling again and shows small daily gains through early intervention.

Seizures and a journey to Madrid for answers

Initial seizures brought a 10-day hospital stay in Malaga with medication that gradually stabilised him. Further episodes in mid-January prompted a trip to Madrid for a second opinion, where specialists helped control the crises. Confirmation of the IRF2BPL diagnosis brought a wave of uncertainty, yet the family has stayed strong. Nahel continues attending early intervention sessions at El Taller de la Amistad in Nerja for physiotherapy and stimulation while receiving epilepsy treatment.

Experimental gene therapy offers sole hope to halt progression

No approved cure currently exists for this disorder. Experts consider an experimental gene therapy developed in the United States the only intervention capable of slowing or stopping neurological decline. Families across Spain, including another child in Granada, have joined forces to access the treatment, which carries a prohibitive total cost of around €1.5 million. Nahel’s parents need approximately €350,000 more to reach their share.

The unity campaign hopes to make Nahel’s future safe.

Ylenia and David established the association ‘Por la sonrisa de Nahel’ to channel donations and organise support events. Significant funds have already arrived through community generosity, but the target remains pressing. “We refuse to live with the regret of never having tried,” David explains. The couple stress that Nahel’s story centres on love, small victories and unwavering determination rather than the diagnosis alone.

How to support Nahel’s smile

Generous individuals can contribute via bank transfer to ES11 2100 5613 8702 0016 4123, referencing ‘Por la sonrisa de Nahel’. Further details and updates appear on the association’s social media channels. Every donation helps bring the pioneering therapy closer and sustains hope for Nahel and other children facing this rare condition.

Rare diseases like IRF2BPL touch thousands of families who rely heavily on scientific research and collective kindness. Ylenia and David remain committed to fighting for their son’s brightest possible tomorrow. “Nahel’s future remains unwritten, and we will do everything in our power for him.”

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Malaga Park & Ride Planned For Rincon De La Victoria

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Bus from Rincon to Malaga centre. Credit: Ayuntamiento de Rincon

Residents across Axarquia and Rincon de la Victoria stand to unlock faster, greener commutes once an ambitious transport interchange opens its gates. Drivers will be able to park vehicles on spacious grounds and hop aboard efficient shuttles straight into the city centre, cutting journey times while leaving congested roads and low-emission zone fines behind.

Smoother daily travel transforms local lives

Commuters are to gain immediate access to interurban buses and potential future metro links at this strategic site beside the Arroyo de Totalan and MA-24 motorway. Commuters from nearby Alhaurin de la Torre benefit equally, enjoying reliable connections that replace lengthy car trips with comfortable public rides. It is hoped that rush-hour traffic will ease as a result as thousands leave vehicles parked behind, freeing up urban streets for pedestrians and cyclists.

Greener mobility boosts community well-being

Sustainable transport options are coming out as the centre of daily routines for thousands of local workers and students. Cleaner air will fill neighbourhoods when fewer cars enter Malaga’s historic heart, while reduced emissions will support ambitious climate goals shared by the Malaga and Rincon councils. Shoppers and tourists will experience smoother arrivals, injecting fresh energy into the regional economy without the usual parking headaches.

Collaborative vision strengthens metropolitan links

Local councils are joining forces to create an integrated network mirroring successful models in Barcelona and Valencia. Improved coordination across operators promises unified ticketing and expanded routes, giving residents flexible choices that adapt to evolving lifestyles. Planners redesign interurban services over the coming years to match real passenger needs, delivering a forward-thinking system that puts people first.

This 53,512-square-metre facility, now fully council property after fair compensation agreements, marks a defining step toward modern mobility. Locals celebrate the promise of shorter journeys, lower stress levels, and stronger community connections that will define life in Malaga’s expanding metropolitan area for decades ahead. The Park and ride is hoped to be finished by 2028.

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Social Media Goes Wild For This Cheap As Chips Discovery In Torre Del Mar

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Social media goes crazy for El Quintero in Torre del Mar. Credit: Influencer Cristina Guerrero Diaz

Social media has been on fire recently with the discovery by influencers of El Quintero, a fishmonger and fish restaurant where the fare is fresher than it can ever get inland and where one can eat like a king cheaper than almost anywhere else in Spain. El Quintero transforms ordinary market visits into memorable culinary adventures in Torre del Mar on the Malaga coast, and the curious and hungry are travelling great distances to see if the rumours are true.

This establishment combines a fishmonger counter with on-site dining tables, allowing customers to select extra fresh catches and enjoy them immediately at affordable rates. Popularity is coming from four market dining experiences and the foodie fashion across Malaga province, mirroring trends seen at Atarazanas in the capital and now thriving here in the Axarquia area.

Unique selection Define El Quintero Experience

Diners can sample an array of Andalucian classics ranging from crisp fried fish packets and sailor-style starters to elaborate seafood platters. Crisp lettuce hearts coupled with Caleta prawns in garlic sauce perfectly complement octopus pipirrana together with beefsteak tomato and avocado combinations.

Croquettes filled with scarlet prawn or red tuna tartare provide delightful variety before golden-fried selections take centre stage, including crystal prawns with egg, opened anchovies, small hake specimens or seasonal summer fries together with fried aubergines and peppers.

Abundant seafood choices await at reasonable costs

Multiple options feature sautéed clams, fine razor clams, cockles, and assorted molluscs plus crustaceans such as carabineros, prawns and crayfish. Whole fish varieties encompass sea bass, turbot, sole and monkfish, while prices stay remarkably accessible with half portions of fried octopus beginning at as low as €9, sautéed clams at €14 and select fish priced per kilo around €35.

Convenient location makes the journey worth it to

Calle del Río 28 is the address for this venue, a mere ten minutes’ walk from the beach and twenty-five minutes’ drive from central Malaga. Reviews maintain an average rating of 4.2 out of five stars drawn from forty-four submissions dated up to 13 April. Many praise exceptional freshness together with friendly, efficient service and the advantage of an integrated fish counter.

El Quintero welcomes guests daily except Mondays (as is the norm with fresh fish in Spain), operating between nine in the morning and five in the afternoon.

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Motril Fiesta De La Primavera 2026

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Motril’s Spring Party 2026. Credit: Ayuntamiento de Motril

Crowds of residents from Motril and its surroundings are due to flock to the Parque de los Pueblos de America for three days of entertainment at the Fiesta de la Primavera 2026. Local mayor Luisa García Chamorro revealed the exciting line-up during a recent presentation.

Spring party 2026 schedule and venue details

Festivities take place across 17, 18 and 19 April in the scenic Parque de los Pueblos de América, chosen deliberately to showcase municipal green spaces as vibrant community hubs. Opening times run from 7pm until midnight on Friday, from 10am to midnight on Saturday and from 10am to 11pm on Sunday.

Diverse music programme highlights Motril Spring Party 2026

Varied musical acts feature prominently throughout the weekend, including indie, rock, pop and flamenco pop performances together with cover bands playing classic hits.

Children will particularly enjoy special segments such as the school choir performance from Colegio Cardenal Belluga and various kids’ entertainment and magic shows.

Food trucks and family activities create the perfect Spring weekend in Motril

Street food options abound with numerous food trucks serving pizzas, hamburgers, tacos, waffles and much more to suit every taste and palate. The young ones will gain dedicated zones offering K-pop dances, bouncy castles and lively entertainment.

Saturday morning brings an exhibition show from local police, firefighters and the civil protection canine unit at 10am, highlighting the dedication of those who keep public order and safety.

Green fingers gather at Teresa’s Cactus and Succulents Garden during the Spring Party

This special gathering takes place at the Teresa Cactus and Succulents Garden on 18 and 19 April. Doors open from 10.30am to 7pm for buying, selling and exchanging plants in this unique provincial attraction.

Mayor Luisa García Chamorro extends a warm welcome to everyone to join in and make the festival their own. Everything is designed to strengthen community bonds and celebrate public spaces.

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